One Year Cancerversary
One year ago today our lives took on a new trajectory – unexpectedly, traumatically, permanently, and so rapidly it took us months to start to really understand what the future was starting to look...
Category: Life
Baby make me feel better
“Baby make me feel better” I love that they help each other so much in different ways. We are so grateful to be at CHOP, which has a good supply of #vincristine, the very cheap,...
22
I haven’t really posted much during #childhoodcancerawareness month because my mind has needed a bit of a break from everything. So much so, that between treatment & Roger starting a new job next month...
Wes honored by PopPop’s Kustom Kars
Over the weekend we were grateful to have Rich Nardiello, the kind heart behind PopPop’s Kustom Kars, over to the house to unveil his latest gift to a young child with cancer: a rocket-themed,...
A very long day
Yesterday I wrote for the first time in a while, about how maintenance isn’t really what you might think. To be honest, I was motivated by weeks of built up reactions to hearing many...
The neutropenia rollercoaster
We managed to convince ourselves we were surely going home together today in spite of almost 8 months of canceled plans and unpredictable days telling us to never get our hopes up. After two...
Captain’s Log: Day 12, CHOP
Last night I was bored and feeling frisky so I tried the cafeteria sushi. Haven’t experienced any ill effects. Will do again. Ruth decided facing out is much more fun than facing in. Neck...
Noonoos are coming back!
UPDATE!! They’re bringing the noonoos back!! Thanks for the swift and effective campaign, folks! Much appreciated!! #bringbacknoonoos Children’s Hospital of Philadelphia
A new kind of disaster nightmare
Yesterday we had some crazy weather roll into Bucks County. Hot and humid with thunderstorms expected, I ran out to pick up some work gloves, and some birthday cake ingredients. There was already a...
Next year we’ll really party
Today is Wesley’s third birthday and until his diagnosis this was a day I had looked forward to for years. His first and second birthdays were mostly just another fun get-together, but he’s old...