So hard not to worry
Maybe, probably, worry isn’t the right word. I don’t consciously wonder what-if and obsess over abstract concerns, but living with a child with cancer means we are never more than a minor symptom away...
Category: Thoughts
Vincristine and Essential Drug Shortages
Over the past few weeks, the leukemia world – and, no doubt, many other cancer communities – have been in turmoil over a much publicized drug shortage. Vincristine is one of the most essential...
22
I haven’t really posted much during #childhoodcancerawareness month because my mind has needed a bit of a break from everything. So much so, that between treatment & Roger starting a new job next month...
A new kind of disaster nightmare
Yesterday we had some crazy weather roll into Bucks County. Hot and humid with thunderstorms expected, I ran out to pick up some work gloves, and some birthday cake ingredients. There was already a...
Bitter
I’ve been increasingly bitter about the hand my sweet Wesley was dealt. His tears, pleas for no more pokes, meds, machines. My heart breaks more every time because he’s getting older and understands more...
Thoughts on offering help
This disease doesn’t just affect Wes; it affects me and Stephanie and everyone we know. A recurring theme during Wes’ ordeal that we’ve heard from so many people we love – locals and our...
Leukemia sucks.
Leukemia sucks. It isn’t just the cancer. It’s the chemo that eats and burns its way through their tiny bodies, killing not only the leukemia but also formerly healthy organs. This can cause...
Grappling with life after treatment
This is a hard post to write, but it’s important to me to face our reality head on. After Long Term Maintenance wraps up – hopefully in spring of 2022 – Wes will hit...
Delayed Intensification
Having a few weeks off of treatment has given us a much-needed break to spend time with Wesley and our new baby Ruth. I had high-hopes for all the things we’d do, and get...
Drug-free Day
Yesterday was the first day Wes hadn’t taken any drugs in months – if we include OTC, maybe since the end of October. It won’t last, but we’re in a rare moment of peace...