❤️👩⚕️😭
Wes had his cardiology appointment today to try figure out what was going on with his heart. His heart rate was pretty elevated a couple weeks ago and gave us a bit of a...
Category: Life
Matters of the Heart
Yesterday was a long day that consisted of a lot of what the fucks. Tldr: everyone is home and fine, but we don’t really have answers. I woke up well before dawn with the...
The Darkest Places
I wonder when, if ever, we’ll see Wes bruised, limping, tired, moody, or any number of totally normal 4 year old traits and not immediately spiral to the darkest places. After a number of...
Forever Away and Tomorrow
It’s hard to put into words all the emotions that come and go on these days. I was shocked and immensely proud of Wes as he informed the nurse to do his “owie” slowly,...
Two years
Two years ago today we got an urgent call from our pediatrician telling us to pack a bag and head to the Children’s Hospital of Philadelphia as soon as we could. In a handful...
So hard not to worry
Maybe, probably, worry isn’t the right word. I don’t consciously wonder what-if and obsess over abstract concerns, but living with a child with cancer means we are never more than a minor symptom away...
600 days in
Tomorrow will be 600 days since Wesley’s diagnosis, with about 250 more days of treatment to go. I haven’t felt much like writing about it lately – not since we went into quarantine in...
Wes’ Ginormous Birthday Parade
Leading up to Wes’ fourth birthday I felt an increasing sorrow, that after so many long months of treatment, after such a rough winter, that this time – the first time he’s actually looked...
The common cold
For weeks now, Wes has been struggling with a cold. Sniffles, congestion, and a recurrent cough have ebbed and flowed since the new year, though a few weeks ago he was still well enough...
