Captain’s Log: Day 12, CHOP
Last night I was bored and feeling frisky so I tried the cafeteria sushi. Haven’t experienced any ill effects. Will do again. Ruth decided facing out is much more fun than facing in. Neck...
Leukemia and Wes Blog
Noonoos are coming back!
UPDATE!! They’re bringing the noonoos back!! Thanks for the swift and effective campaign, folks! Much appreciated!! #bringbacknoonoos Children’s Hospital of Philadelphia
Bring back noonoos!
What things are on practically every kids menu at every restaurant and institutional cafeteria in the US? Cheeseburgers, pizza, chicken fingers, and spaghetti. It’s practically the only thing this country agrees on, and while...
A long stay
It looks increasingly likely that this stay will be Wes’ longest yet – it’s already the longest since the very first stay after diagnosis. He’s feeling well, but his ANC is stubbornly stuck at...
New challenges
Overnight Tuesday-Wednesday, Wes was admitted through the ER with a high temperature. This wasn’t totally unexpected – this phase of treatment has been difficult, with new chemo drugs that have left him frequently (and...
Another trip to the ER
After feeling pretty great recently, Wes’ energy and appetite took a slow dive over the past week. With an spinal on Monday and the new chemo he’s been on lately, he’s been uncharacteristically nauseated,...
A new kind of disaster nightmare
Yesterday we had some crazy weather roll into Bucks County. Hot and humid with thunderstorms expected, I ran out to pick up some work gloves, and some birthday cake ingredients. There was already a...
Bitter
I’ve been increasingly bitter about the hand my sweet Wesley was dealt. His tears, pleas for no more pokes, meds, machines. My heart breaks more every time because he’s getting older and understands more...
Next year we’ll really party
Today is Wesley’s third birthday and until his diagnosis this was a day I had looked forward to for years. His first and second birthdays were mostly just another fun get-together, but he’s old...
Froyobot
Wes’ numbers came up a bit and it’s likely they are coming home tomorrow, so they took him off the IV for a while this afternoon. When he’s attached to it he can’t leave...