Remission
Remission is a word that’s nearly as powerful as “cancer” itself, a term that’s almost exclusively used in context of a celebration that cancer’s butt has been kicked. Wes is officially in remission, and...
Category: Updates
Signposts of his illness
We’ve never been helicopter parents, hovering over our kid worried about every little sniffle and scrape, but there’s no escaping the necessity now of careful monitoring. His weight, his temperature, how quickly incisions and...
Never home for long
Last week’s hospitalization shook me. Because Wes seems healthy – all of his visible symptoms are related to treatment more than the underlying leukemia – it was easy to get comfortable after returning home...
The new normal
Over the weekend Wes seemed to be rebounding from the end of his dex treatment – mood, interest in food, and activity were all getting better than they’d been in two weeks – but...
Soon to be four
In late summer we shared the great news that Stephanie is pregnant again, an incredibly happy moment we’d been waiting for ever since we found out just how great this parenthood thing fits us....
Cutting the dex
Yesterday’s chemo visit went well – it’s about an hour drive in traffic, and the first snow of the season was in the forecast for the afternoon, but mom and Wes were home earlier...
A little bug can be a big deal
Neither of us have ever been germophobes with Wes, and fully bought into the notion that a little filth was good for his immune system development. We let him play barefoot all over Long...
Diagnosis, prognosis, and treatment
We’ve gotten a lot of questions around what, exactly, Wes’ diagnosis is, what the treatments look like, and what his chances are for recovery and return to health. I’m going to try to summarize...
Homeward bound
A rare view outside After a few days of stable recovery the team here thinks Wes is ready to go home tomorrow. He had a minor fever after his procedures Wednesday which put him...
First chemo
Wes had his first proper round of chemo today – two drugs, delivered via the port in his chest – and he took it incredibly well. It was a good finish to a great...