Long Term Maintenance
Eight months of treatment reached a fever pitch (pun intended) last month with Delayed Intensification, that landed him in the hospital for over 19 days in June, ending early last week when his ANC...
Category: Updates
The neutropenia rollercoaster
We managed to convince ourselves we were surely going home together today in spite of almost 8 months of canceled plans and unpredictable days telling us to never get our hopes up. After two...
Captain’s Log: Day 12, CHOP
Last night I was bored and feeling frisky so I tried the cafeteria sushi. Haven’t experienced any ill effects. Will do again. Ruth decided facing out is much more fun than facing in. Neck...
Noonoos are coming back!
UPDATE!! They’re bringing the noonoos back!! Thanks for the swift and effective campaign, folks! Much appreciated!! #bringbacknoonoos Children’s Hospital of Philadelphia
A long stay
It looks increasingly likely that this stay will be Wes’ longest yet – it’s already the longest since the very first stay after diagnosis. He’s feeling well, but his ANC is stubbornly stuck at...
New challenges
Overnight Tuesday-Wednesday, Wes was admitted through the ER with a high temperature. This wasn’t totally unexpected – this phase of treatment has been difficult, with new chemo drugs that have left him frequently (and...
Another trip to the ER
After feeling pretty great recently, Wes’ energy and appetite took a slow dive over the past week. With an spinal on Monday and the new chemo he’s been on lately, he’s been uncharacteristically nauseated,...
Bitter
I’ve been increasingly bitter about the hand my sweet Wesley was dealt. His tears, pleas for no more pokes, meds, machines. My heart breaks more every time because he’s getting older and understands more...
ANC Zero
Since Wednesday’s end of steroids (for now), Wes has been feeling great. His energy has been high, his spirits great, and his appetite ravenous. We had a good few days, looking forward to this...
Delayed Intensification and Neurotoxicity
Every phase of treatment is different, it’s own challenges. Different drugs, at a different tempo; a different schedule, sometimes more in-patient, sometimes more out-patient. But it’s also cumulative – each round has been harder...