❤️👩⚕️😭
Wes had his cardiology appointment today to try figure out what was going on with his heart. His heart rate was pretty elevated a couple weeks ago and gave us a bit of a...
Author: Stephanie Howard
Matters of the Heart
Yesterday was a long day that consisted of a lot of what the fucks. Tldr: everyone is home and fine, but we don’t really have answers. I woke up well before dawn with the...
The Darkest Places
I wonder when, if ever, we’ll see Wes bruised, limping, tired, moody, or any number of totally normal 4 year old traits and not immediately spiral to the darkest places. After a number of...
Forever Away and Tomorrow
It’s hard to put into words all the emotions that come and go on these days. I was shocked and immensely proud of Wes as he informed the nurse to do his “owie” slowly,...
Baby make me feel better
“Baby make me feel better” I love that they help each other so much in different ways. We are so grateful to be at CHOP, which has a good supply of #vincristine, the very cheap,...
22
I haven’t really posted much during #childhoodcancerawareness month because my mind has needed a bit of a break from everything. So much so, that between treatment & Roger starting a new job next month...
Beads of Courage
Today Wes hit Maintenance. He’s done with Frontline – the first four horrific phases of treatment for #acutelymphoblasticleukemia This string of beads is about 20 feet long with about 600 beads. Each bead represents something...
Captain’s Log: Day 12, CHOP
Last night I was bored and feeling frisky so I tried the cafeteria sushi. Haven’t experienced any ill effects. Will do again. Ruth decided facing out is much more fun than facing in. Neck...
Bitter
I’ve been increasingly bitter about the hand my sweet Wesley was dealt. His tears, pleas for no more pokes, meds, machines. My heart breaks more every time because he’s getting older and understands more...
Leukemia sucks.
Leukemia sucks. It isn’t just the cancer. It’s the chemo that eats and burns its way through their tiny bodies, killing not only the leukemia but also formerly healthy organs. This can cause...