Homeward bound
A rare view outside After a few days of stable recovery the team here thinks Wes is ready to go home tomorrow. He had a minor fever after his procedures Wednesday which put him...
Monthly Archive: November 2018
Grief needs to be channeled
Hospitalization is a remarkable stressor, and for parents whose children are seriously ill it can trigger all kinds of behavior that may otherwise be dormant. This morning alone I’ve witnessed three fathers acting out...
Turning it off
If you’re the parent of a healthy child, I completely understand being unable to process our story. Until exactly five days ago that was me too. It’s too hard to contemplate how quickly, without...
The kids are amazing
It’s really remarkable and impossible to overstate just how strong and resilient the kids here are. Some of these kids have been undergoing treatment for years but they are still full of smiles and...
First chemo
Wes had his first proper round of chemo today – two drugs, delivered via the port in his chest – and he took it incredibly well. It was a good finish to a great...
Today was a good day
We had some more good news today. One of the big procedures yesterday was drawing spinal fluid to look for signs of leukemia in his nervous system, which would be a major complication. They...