ANC Zero
Since Wednesday’s end of steroids (for now), Wes has been feeling great. His energy has been high, his spirits great, and his appetite ravenous. We had a good few days, looking forward to this...
A journey with childhood acute lymphoblastic leukemia
Today it’s been 200 days since Wes’ diagnosis, with at least 1000 days to go until End of Treatment (EOT) and at least 3500 days until he’s considered cured. It’s a marathon, not a...
This disease doesn’t just affect Wes; it affects me and Stephanie and everyone we know. A recurring theme during Wes’ ordeal that we’ve heard from so many people we love – locals and our...
Every phase of treatment is different, it’s own challenges. Different drugs, at a different tempo; a different schedule, sometimes more in-patient, sometimes more out-patient. But it’s also cumulative – each round has been harder...
Leukemia sucks. It isn’t just the cancer. It’s the chemo that eats and burns its way through their tiny bodies, killing not only the leukemia but also formerly healthy organs. This can cause...
This is a hard post to write, but it’s important to me to face our reality head on. After Long Term Maintenance wraps up – hopefully in spring of 2022 – Wes will hit...
As each treatment phase ends and another begins we receive the next “roadmap” – a calendar of the procedures and meds he’ll be getting. In general, we have a broad understanding of what’s to...
Having a few weeks off of treatment has given us a much-needed break to spend time with Wesley and our new baby Ruth. I had high-hopes for all the things we’d do, and get...
Yesterday was the first day Wes hadn’t taken any drugs in months – if we include OTC, maybe since the end of October. It won’t last, but we’re in a rare moment of peace...
It’s been a bit since I’ve posted an update about Wes. Two weeks ago we were grateful – and a little surprised – to all be together for Ruth’s birth. A few days later...