Froyobot
Wes’ numbers came up a bit and it’s likely they are coming home tomorrow, so they took him off the IV for a while this afternoon. When he’s attached to it he can’t leave...
Category: Life
Thoughts on offering help
This disease doesn’t just affect Wes; it affects me and Stephanie and everyone we know. A recurring theme during Wes’ ordeal that we’ve heard from so many people we love – locals and our...
Leukemia sucks.
Leukemia sucks. It isn’t just the cancer. It’s the chemo that eats and burns its way through their tiny bodies, killing not only the leukemia but also formerly healthy organs. This can cause...
Grappling with life after treatment
This is a hard post to write, but it’s important to me to face our reality head on. After Long Term Maintenance wraps up – hopefully in spring of 2022 – Wes will hit...
Miles to go…
As each treatment phase ends and another begins we receive the next “roadmap” – a calendar of the procedures and meds he’ll be getting. In general, we have a broad understanding of what’s to...
Delayed Intensification
Having a few weeks off of treatment has given us a much-needed break to spend time with Wesley and our new baby Ruth. I had high-hopes for all the things we’d do, and get...
Drug-free Day
Yesterday was the first day Wes hadn’t taken any drugs in months – if we include OTC, maybe since the end of October. It won’t last, but we’re in a rare moment of peace...
Welcome, Ruth
Ruth Marjorie Howard came thundering into this world yesterday at 1:43pm like the force she will one day become. The sun was shining, birds were chirping, the cops showed up… But we’ll get into...
Packing List for CHOP
One of the first things we did when we came home from that initial week in the hospital was put together a “go bag” of essentials we’d need if we had to scramble and...
The fever protocol
As I write, we’ve been on fever watch for the past day or so and are hoping for everyone’s sake that his temperature stays below 100.3 for the next five hours. When we’re not...