1000 Days
This warrior goober is 1000 days old today. In those 1000 days #wesleymorrishoward has been through so much. From pulling bar shifts with Mom, to moving cross country in a camper with two cats...
Author: Stephanie Howard
Winding down consolidation
Now that he’s familiar with the steps leading up to either port or arm IV access his anxiety is going through the roof. For a 25lb kiddo it now takes three of us to...
Another bad Peg reaction
Today we went down to the main CHOP campus in Philly to attempt to give Wes the PEG (PEG-L-asparaginase) chemo that he had an allergic reaction to on Friday. The substitute chemo (Erwinia) wasn’t...
A hard day and uncertain next steps
Yesterday was one of our hardest days yet. We went in for Wes’ sedated spinal injection of methotrexate (chemo) after getting derailed last week. He was NPO, which is usually very stressful and he...