A qualified success
Friday we both went to King of Prussia with Wesley for an important discussion with the team about his Peg reactions and the path ahead now, as well as his regular sedated LP (lumbar...
Author: Roger Howard
Anaphylaxis
We are heading to Philadelphia to CHOP this morning for Wes’ first chemo since he had a bad reaction to PEG last week. Because of a critical shortage in the alternative drug, Erwinase, the...
Allergies and short supplies
Friday was chemo day in King of Prussia – mom and Wes left the house early as usual for their third and last trip to the clinic this week. After last week’s minor setback...
Jerk or cancer patient? Maybe both.
The truth is that in between chemo, when he’s not being poked and prodded by someone, Wes is just a kid like most. He lacks that sense of existential dread that haunts us as...
Feeding the beast
Keeping a child well fed is one of the most basic functions of parenthood. Wes breastfed until after 2 and until he weened had really never eaten much besides – he never had formula...
