Next year we’ll really party
Today is Wesley’s third birthday and until his diagnosis this was a day I had looked forward to for years. His first and second birthdays were mostly just another fun get-together, but he’s old...
Author: Roger Howard
Froyobot
Wes’ numbers came up a bit and it’s likely they are coming home tomorrow, so they took him off the IV for a while this afternoon. When he’s attached to it he can’t leave...
ANC Zero
Since Wednesday’s end of steroids (for now), Wes has been feeling great. His energy has been high, his spirits great, and his appetite ravenous. We had a good few days, looking forward to this...
200 days in, 1000 to go
Today it’s been 200 days since Wes’ diagnosis, with at least 1000 days to go until End of Treatment (EOT) and at least 3500 days until he’s considered cured. It’s a marathon, not a...
Thoughts on offering help
This disease doesn’t just affect Wes; it affects me and Stephanie and everyone we know. A recurring theme during Wes’ ordeal that we’ve heard from so many people we love – locals and our...
Delayed Intensification and Neurotoxicity
Every phase of treatment is different, it’s own challenges. Different drugs, at a different tempo; a different schedule, sometimes more in-patient, sometimes more out-patient. But it’s also cumulative – each round has been harder...
Grappling with life after treatment
This is a hard post to write, but it’s important to me to face our reality head on. After Long Term Maintenance wraps up – hopefully in spring of 2022 – Wes will hit...
Miles to go…
As each treatment phase ends and another begins we receive the next “roadmap” – a calendar of the procedures and meds he’ll be getting. In general, we have a broad understanding of what’s to...
Delayed Intensification
Having a few weeks off of treatment has given us a much-needed break to spend time with Wesley and our new baby Ruth. I had high-hopes for all the things we’d do, and get...
Drug-free Day
Yesterday was the first day Wes hadn’t taken any drugs in months – if we include OTC, maybe since the end of October. It won’t last, but we’re in a rare moment of peace...