Huge News
For months we’d been hearing that COG – the body that designs the standard treatment protocols that Wes’ treatment follows – was rolling out a shortened protocol for Standard Risk boys. Under the previous...
Author: Roger Howard
Long Term Maintenance
Eight months of treatment reached a fever pitch (pun intended) last month with Delayed Intensification, that landed him in the hospital for over 19 days in June, ending early last week when his ANC...
The neutropenia rollercoaster
We managed to convince ourselves we were surely going home together today in spite of almost 8 months of canceled plans and unpredictable days telling us to never get our hopes up. After two...
Zero to Twenty 😰
On June 4 Wes and I rushed to the ER in the middle of the night. He had a fever, and we suspected it was the result of neutropenia from the barrage of new...
Noonoos are coming back!
UPDATE!! They’re bringing the noonoos back!! Thanks for the swift and effective campaign, folks! Much appreciated!! #bringbacknoonoos Children’s Hospital of Philadelphia
Bring back noonoos!
What things are on practically every kids menu at every restaurant and institutional cafeteria in the US? Cheeseburgers, pizza, chicken fingers, and spaghetti. It’s practically the only thing this country agrees on, and while...
A long stay
It looks increasingly likely that this stay will be Wes’ longest yet – it’s already the longest since the very first stay after diagnosis. He’s feeling well, but his ANC is stubbornly stuck at...
New challenges
Overnight Tuesday-Wednesday, Wes was admitted through the ER with a high temperature. This wasn’t totally unexpected – this phase of treatment has been difficult, with new chemo drugs that have left him frequently (and...
Another trip to the ER
After feeling pretty great recently, Wes’ energy and appetite took a slow dive over the past week. With an spinal on Monday and the new chemo he’s been on lately, he’s been uncharacteristically nauseated,...
A new kind of disaster nightmare
Yesterday we had some crazy weather roll into Bucks County. Hot and humid with thunderstorms expected, I ran out to pick up some work gloves, and some birthday cake ingredients. There was already a...