A new kind of disaster nightmare
Yesterday we had some crazy weather roll into Bucks County. Hot and humid with thunderstorms expected, I ran out to pick up some work gloves, and some birthday cake ingredients. There was already a...
Monthly Archive: May 2019
Bitter
I’ve been increasingly bitter about the hand my sweet Wesley was dealt. His tears, pleas for no more pokes, meds, machines. My heart breaks more every time because he’s getting older and understands more...
Next year we’ll really party
Today is Wesley’s third birthday and until his diagnosis this was a day I had looked forward to for years. His first and second birthdays were mostly just another fun get-together, but he’s old...
Froyobot
Wes’ numbers came up a bit and it’s likely they are coming home tomorrow, so they took him off the IV for a while this afternoon. When he’s attached to it he can’t leave...
ANC Zero
Since Wednesday’s end of steroids (for now), Wes has been feeling great. His energy has been high, his spirits great, and his appetite ravenous. We had a good few days, looking forward to this...
200 days in, 1000 to go
Today it’s been 200 days since Wes’ diagnosis, with at least 1000 days to go until End of Treatment (EOT) and at least 3500 days until he’s considered cured. It’s a marathon, not a...
Thoughts on offering help
This disease doesn’t just affect Wes; it affects me and Stephanie and everyone we know. A recurring theme during Wes’ ordeal that we’ve heard from so many people we love – locals and our...
Delayed Intensification and Neurotoxicity
Every phase of treatment is different, it’s own challenges. Different drugs, at a different tempo; a different schedule, sometimes more in-patient, sometimes more out-patient. But it’s also cumulative – each round has been harder...
Leukemia sucks.
Leukemia sucks. It isn’t just the cancer. It’s the chemo that eats and burns its way through their tiny bodies, killing not only the leukemia but also formerly healthy organs. This can cause...