Monthly Archive: January 2019

An update on Wes

It’s been a while – things have been largely quiet, and we’ve been settling in to new routines as I settle in to my leave from work. More about that someday. Wesley is currently...

Back on track

The past few weeks have been quiet after several hiccups transpired to delay Wes’ treatment, and there’s been so much going on – or not going on – that I’ve not been in a...

Crying

I was never much of a crier until we had Wes. It was never a macho thing with me, but I wasn’t well connected to my feelings and struggled with understanding them, let alone...

Grateful for society

Grateful for society

I’m grateful today that as we enter a new year I received approval for Pennsylvania Medical Assistance, a Medicaid program that provides backup coverage for families with seriously ill children, filling in the gaps...