Portrait – November 30, 2018
Wesley loved eating cookies – kiecoos – until his diagnosis. He’s been fondling this Christmas tree cookie for almost an hour and occasionally tells me it’s an ice cream cone and then pantomimes licking...
Monthly Archive: November 2018
Induction complete – much more to come
Yesterday was the official end of induction, the first phase of treatment. Induction is explained as: The goal of induction chemo is to get the leukemia into remission (complete remission). This means that leukemia...
Quiet house
Today is one of many days lately where I want to be somewhere I can’t. Though increasingly routine, Wes is having a procedure today all the way down in Philadelphia, an uncomfortable reminder that...
The months ahead
If we seem chipper and productive I think a lot is owed to focusing on a few days at a time, maybe looking as far out as two weeks. As a coping mechanism this...
Signposts of his illness
We’ve never been helicopter parents, hovering over our kid worried about every little sniffle and scrape, but there’s no escaping the necessity now of careful monitoring. His weight, his temperature, how quickly incisions and...