Deeply Conflicted
February, 2021. End of treatment was originally supposed to be a year from now, but here we are, a year early, all together and intact, and yet I am struggling to find a way...
A journey with childhood acute lymphoblastic leukemia
February, 2021. End of treatment was originally supposed to be a year from now, but here we are, a year early, all together and intact, and yet I am struggling to find a way...
More than 800 days ago we were blindsided by the quiet havoc of a tiny genetic mutation: our beautiful Wes had cancer. Over the past two and a half years, he has been subjected...
Wes had his cardiology appointment today to try figure out what was going on with his heart. His heart rate was pretty elevated a couple weeks ago and gave us a bit of a...
Yesterday was a long day that consisted of a lot of what the fucks. Tldr: everyone is home and fine, but we don’t really have answers. I woke up well before dawn with the...
For months now, Wes has been suffering from a difficult series of skin conditions that have at times variously covered his hands, arms, groin, legs, and torso in inflamed, dry, itchy, and sometimes painful...
I wonder when, if ever, we’ll see Wes bruised, limping, tired, moody, or any number of totally normal 4 year old traits and not immediately spiral to the darkest places. After a number of...
Itβs hard to put into words all the emotions that come and go on these days. I was shocked and immensely proud of Wes as he informed the nurse to do his βowieβ slowly,...
Maybe, probably, worry isn’t the right word. I don’t consciously wonder what-if and obsess over abstract concerns, but living with a child with cancer means we are never more than a minor symptom away...
Tomorrow will be 600 days since Wesley’s diagnosis, with about 250 more days of treatment to go. I haven’t felt much like writing about it lately – not since we went into quarantine in...