Out with IM, in with DI
It’s been a bit since I’ve posted an update about Wes. Two weeks ago we were grateful – and a little surprised – to all be together for Ruth’s birth. A few days later...
A journey with childhood acute lymphoblastic leukemia
It’s been a bit since I’ve posted an update about Wes. Two weeks ago we were grateful – and a little surprised – to all be together for Ruth’s birth. A few days later...
Ruth Marjorie Howard came thundering into this world yesterday at 1:43pm like the force she will one day become. The sun was shining, birds were chirping, the cops showed up… But we’ll get into...
We’ve been here a few days now, and Wes has improved consistently. He’s got oral mucositis, a common side-effect of chemo, particularly the high dose methotrexate that he’s receiving every couple of weeks. Mucositis...
We can’t be in two places at once – so says the universe, and it seems to be true because there’s no law I’d rather violate than this one. My extremely pregnant wife is...
As I write, we’ve been on fever watch for the past day or so and are hoping for everyone’s sake that his temperature stays below 100.3 for the next five hours. When we’re not...
Now that he’s familiar with the steps leading up to either port or arm IV access his anxiety is going through the roof. For a 25lb kiddo it now takes three of us to...
It’s been a while – things have been largely quiet, and we’ve been settling in to new routines as I settle in to my leave from work. More about that someday. Wesley is currently...
The past few weeks have been quiet after several hiccups transpired to delay Wes’ treatment, and there’s been so much going on – or not going on – that I’ve not been in a...
Friday we both went to King of Prussia with Wesley for an important discussion with the team about his Peg reactions and the path ahead now, as well as his regular sedated LP (lumbar...