The Darkest Places
I wonder when, if ever, we’ll see Wes bruised, limping, tired, moody, or any number of totally normal 4 year old traits and not immediately spiral to the darkest places.
After a number of symptoms reminiscent of initial diagnosis started popping up this week, we decided it would be prudent to have blood work done.
Limping, bruising, petichiae, & body temp slightly elevated, are all able to be attributed to either chemo side effects or this neverending rash (methotrexate rash combined with Gionatti-Crosti Syndrome) he’s fighting. He’s been saying the “pokies” are inside him and we thought it was from the rash, but after switching adjectives to describe the sensation as “glitter” the doctor was like ummm that’s exactly the perfect word for Neuropathy.
I was so relieved to hear the reassuring words that my 4 year old is ~only~ experiencing neuropathy again.
What a ride.
He’s fine, just a little extra battered after the last dose of vincristine so probably heading back to PT soon and he’ll have to wear his braces again.
But it’s not that other thing which we won’t talk about.
Fucking anxiety is going to be the death of me. Seriously, #fuckcancer
This kiddo is so brave and so sweet. He was a bit apprehensive about his arm poke, but once the needle was in he was able to breathe and watch and learn. He continues to make me so damn proud.
Five seconds after we got in the car he was sad because the doctors and nurses were going to miss him, but wanted to let them know that he’ll be back in “one hundred minutes”.
